We told our family, not exactly telling the seriousness of the situation. our whole family was heartbroken. Shortly after coming home, Robbie went into heart failure. we brought him to the ER, they transferred him to Yale by ambulance. He was given MANY drugs and I was taught how to administer them. we were there a week. His day started at 5 am with his first dose till his last dose at midnight. I slept him in my bed so I could watch him to make sure he kept breathing. He was good about two weeks on the meds.
One day I noticed he'd slept all day(which wasn't so unusual since he was so week. He'd only eaten 2 oz of formula all day and his breathing was weird and he was pulling at the ribs. I rushed him to the pedi, who looked scared and had me take him to the ER, they pushed us right through to NICU. They gave him oxygen, and a feeding tube, and told me to call my priest. We had a baptism for him in the hospital, which I knew was really his last rites incase something went wrong, Robbie was transferred to Yale Children’s Hospital. They remembered us when we got there. Robbie had his surgery July 17th, 2005 at seven weeks old. They found an additional hole in his heart and sewed that when they patched the other hole. I can tell you I have never seen anything as horrible as what Robbie looked like in that bed after the surgery. I was told he would be paralyzed the first night so he wouldn't hurt himself. He did, for just a second open his eyes and smile at me, like to tell me he'd be okay. He was a miracle. truly.
It was a horrible journey, but the reward is someone I could never express in mere words his meaning to me. This child saved my life and restored my faith. 4 days later he was home like nothing happened! He was a whole new kid! He was weak for a long time, but he didn't even have pain meds when he came home! He's amazing. He has had great follow ups since and now only has to be checked every three years! He is a healthy 6 year old now, He plays football and is very smart. He has some other health issues, but nothing we can’t handle. He's still a little small but within healthy limits. He'll need no additional surgeries. I tell him all the time that the Dr's fixed his heart, and he fixed mine. He is my best friend.