Went to the cardiologist today and I got nowhere. He seems to think that this fatigue & low energy could be an issue of dehydration. I had an EKG run and that showed I was in sinus rhythm. He assures me that I am not in afib so that is not what's causing the fatigue & low energy. I nearly told him that I know what afib feels like and I know my symptoms have NOTHING to do with a fib,but of course I didn't actually say that.
He wants me to increase my water intake and he had me schedule an Echo so he could make sure that there is no new structural issues with the heart. My Echo is next Thursday at 4:45pm. If nothing comes up in the Echo I have an appointment with him in 3 months.
So more tests and still nowhere closer to an answer...
I'm starting to feel like it's all in my head and I don't like that feeling. I know what I am feeling is not normal...even for a cardiac patient like me. I don't know what will happen if the Echo shows nothing and my symptoms haven't resolved in 3 months.
So I am still in limbo...
I was born with a complex congenital heart defect and I will use this blog to talk about different things related to that. I will also talk about things not related to my health concerns.I want CHD parents to know that their children can live a fairly normal life just like I have gotten to do.
Tuesday, January 31, 2012
Monday, January 30, 2012
No where closer to answers
Well I played phone tag with my PCP's office all day but I finally got ahold of my PCP and what did the results say...
NEGATIVE!
The labs all came back normal. She asked if I was still feeling fatigued and I saud yes and that I was going to be talking to my Cardiologist about it tomorrow. She asked if I had any questions and I said no and then we hung up.
Now after I hung up I felt a lot of things.Relief that my labs were normal but also so frustrated. I didn't want there to be anything wrong but if there was something wrong in my labs than it wasn't cardiac related. Now I'm freaking out that it could be cardiac related. My mechanical valve is supposed to last 25-30 years and it's only been 6 1/2 so it better not be that. The other option is that it could be my pulmonary stenosis worsening. I know for a fact the worsening of Pulmonary Stenosis has fatigue as a symptom.
I am so thankful that I have my cardiology appointment tomorrow. I actually hope he schedules a cath. Of course I don't want to be in the hospital (It's gonna be a different hospital because my old hospital does not take my insurance anymore) But I also really want some answers. I need to feel better.
-Fatigue
-Low energy
-Occaisional chest pain
-Pounding heart
Those four symptoms are not fun and they have come on in the past four months.
Please pray that I get answers tomorrow at my cardiology appointment and that I am put on the road to recovery soon,whatever that road may involve.
NEGATIVE!
The labs all came back normal. She asked if I was still feeling fatigued and I saud yes and that I was going to be talking to my Cardiologist about it tomorrow. She asked if I had any questions and I said no and then we hung up.
Now after I hung up I felt a lot of things.Relief that my labs were normal but also so frustrated. I didn't want there to be anything wrong but if there was something wrong in my labs than it wasn't cardiac related. Now I'm freaking out that it could be cardiac related. My mechanical valve is supposed to last 25-30 years and it's only been 6 1/2 so it better not be that. The other option is that it could be my pulmonary stenosis worsening. I know for a fact the worsening of Pulmonary Stenosis has fatigue as a symptom.
I am so thankful that I have my cardiology appointment tomorrow. I actually hope he schedules a cath. Of course I don't want to be in the hospital (It's gonna be a different hospital because my old hospital does not take my insurance anymore) But I also really want some answers. I need to feel better.
-Fatigue
-Low energy
-Occaisional chest pain
-Pounding heart
Those four symptoms are not fun and they have come on in the past four months.
Please pray that I get answers tomorrow at my cardiology appointment and that I am put on the road to recovery soon,whatever that road may involve.
Sunday, January 22, 2012
Freaky Symptoms
In July of 2011 I was sicker than a dog. I had gastroenteritis as well as trochanteric (sp?) bursitis in my hip. Now my hips are already screwy due to the Congenital Hip Dysplasia but they usually don't cause me pain. Well with the trochanteric bursitis I experienced a LOT of pain. I was on pain pills before and after steroid shots were administered and I had pretty much no appetite for a month. I really didn't get any sleep for at least 2 weeks.
So when the new semester started in August and I was still fatigued,I assumed that it was just leftover from being sick for a month.As time went on I was still fatigued. By then I attributed the fatigue to taking 5 classes. I hoped that Winter Break would be a nice restful time where I could catch up on sleep.
Well it's now Mid January and I am still feeling fatigued in addition to a decrease in energy. I had to go to my new Primary Care doctor for a follow up (Something I had put off for awhile because I was stressed with school & then really fatigued) I told my doctor what I was feeling and then suggested that she order a CBC and a Thyroid panel. She agreed and also added B12 labs. She said that anytime someone comes in with the symptoms I am experiencing the first logical step is to run the labs that she ordered for me to check for anemia and possible thyroid issues.
Last night (or rather this morning) I woke up with a killer headache and my heart was pounding. Not racing,just pounding. I was really sweaty too (though that could be because I was under 3 blankets) It took about an hour for my pounding heart to calm down.
Hopefully the labs reveal something because I am so tired of being fatigued and having no energy. If the labs don't reveal anything I'll bring these symptoms up to my cardiologist when I go see him on the 31st and see what he suggests/advises.
So when the new semester started in August and I was still fatigued,I assumed that it was just leftover from being sick for a month.As time went on I was still fatigued. By then I attributed the fatigue to taking 5 classes. I hoped that Winter Break would be a nice restful time where I could catch up on sleep.
Well it's now Mid January and I am still feeling fatigued in addition to a decrease in energy. I had to go to my new Primary Care doctor for a follow up (Something I had put off for awhile because I was stressed with school & then really fatigued) I told my doctor what I was feeling and then suggested that she order a CBC and a Thyroid panel. She agreed and also added B12 labs. She said that anytime someone comes in with the symptoms I am experiencing the first logical step is to run the labs that she ordered for me to check for anemia and possible thyroid issues.
Last night (or rather this morning) I woke up with a killer headache and my heart was pounding. Not racing,just pounding. I was really sweaty too (though that could be because I was under 3 blankets) It took about an hour for my pounding heart to calm down.
Hopefully the labs reveal something because I am so tired of being fatigued and having no energy. If the labs don't reveal anything I'll bring these symptoms up to my cardiologist when I go see him on the 31st and see what he suggests/advises.
Saturday, January 7, 2012
A rough start to the new year
2011 was a year of changes and adjustments. New house,new friendships and most of all new oppurtunities. What I didn't expect was 2012 to start off with a bang.
My mother had been offered a job that she desperately needed and on New Years Day she found out that the job had to be eliminated to save someone else's job. So my mom is back to the drawing board in terms of finding a job.Of course it is difficult because the job market is so crappy right now.
She's cranking out those resumes and doing everything she possibly can to make sure that she gets interviews.
Then on Friday morning my mother woke me up at about 9ish and informed me that my uncle (who I am incredibly close to) had been robbed at gunpoint while at work the night before (Thursday) He's all right physically,but emotionally he's still a mess. The dr has diagnosed him with PTSD and he goes in to see his dr again on Monday.
The relationship I have with my uncle is a very close one. He's the one who stayed nights with me at the hospital so that my mom and grandma could get some rest. He is the only man that has been there for me through everything. He and I are very much the same in a lot of ways and I know that his family means everything to him.
We went out to dinner last night for my grandma's husband's birthday but I could tell that everyone's minds were elsewhere. It just didn't feel right to me to celebrate a birthday with everything else that had gone on.
The only good thing about this year so far is that my kitten Prince was tested for Feline Leukemia for a 3rd time at the vet's yesterday and it came back negative. We were thrilled and we were told that they'd never have to run that test again.
2012 can only improve from here....right?
My mother had been offered a job that she desperately needed and on New Years Day she found out that the job had to be eliminated to save someone else's job. So my mom is back to the drawing board in terms of finding a job.Of course it is difficult because the job market is so crappy right now.
She's cranking out those resumes and doing everything she possibly can to make sure that she gets interviews.
Then on Friday morning my mother woke me up at about 9ish and informed me that my uncle (who I am incredibly close to) had been robbed at gunpoint while at work the night before (Thursday) He's all right physically,but emotionally he's still a mess. The dr has diagnosed him with PTSD and he goes in to see his dr again on Monday.
The relationship I have with my uncle is a very close one. He's the one who stayed nights with me at the hospital so that my mom and grandma could get some rest. He is the only man that has been there for me through everything. He and I are very much the same in a lot of ways and I know that his family means everything to him.
We went out to dinner last night for my grandma's husband's birthday but I could tell that everyone's minds were elsewhere. It just didn't feel right to me to celebrate a birthday with everything else that had gone on.
The only good thing about this year so far is that my kitten Prince was tested for Feline Leukemia for a 3rd time at the vet's yesterday and it came back negative. We were thrilled and we were told that they'd never have to run that test again.
2012 can only improve from here....right?
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